Saturday, 5 April 2008
Watch your letter box
I've also had a nice long weekend in Dublin last weekend. James gets back from his conference there today (I flew back on my own and left him out there), so I should have some piccies to put up soon. I guess generally I've been doing OK recently; ticking along, going to work, that sort of thing. There just hasn't been much to come here and report on.
Thursday, 13 March 2008
The New Face of Cancer
I am to be the face of the Nationwide Building Society's AGM booklet due to be coming through a letterbox near you sometime soon. I am so excited. My face will be landing on the mats of Nationwide customers all over the UK (poor them!) to persuade them to return their AGM voting forms; for every form returned Nationwide will donate money to Macmillan Cancer Support and I am to be the face to persuade y'all what a worthy cause it is. Whoop Whoop!
Pull the Udder one!
Well, I just have to come and plug my friend Leigh (aka "one of the cows") fund raising activities. He is running a very long way for charity (52.8 miles including The Silverstone Half marathon, The London Marathon and The Great North Run). It's all in aid of a very fantastic cause; The Willow Foundation. Remember that charity that organised my amazing-pamper-extravaganza-weekend at Ragdale Hall (One of Europe's Top Health Spas no less). One of the most top things I will remember to have come out of my pants cancer diagnosis and something to keep me going and looking forward to. Well, Leigh is running to raise money for this charity to keep Young-un's like me in special days out. Boy does he have some money to raise!
So, here is the plug for his sponsorship site
www.justgiving.com/leighchurch
I don't think he is running it in costume - polyester and running a long way probably don't go together too well ;-D
Sunday, 2 March 2008
“Lydia", "Dawn", "Celia", "Rebeccah”
I’ve been away on a works conference to Toulouse. It was good fun, oooppss sorry, very productive ;-D
Social events where the champagne flowed and much fun was had by all. I had such a great giggle, especially on the evening of the Wine Casino; where you had to bet on casino tables based around wine tasting to win chips for an auction of prizes at the end of the night. The girls and I won the top prize after I bet “one trillion dollars” – we didn’t have this amount of winnings but everyone around threw their chips into the circle to allow us to win – so touching. The title of this post is also related to this and is a totally in-joke; one of those you-just-had-to-be-there type of things. Oh my sides hurt from so much laughing. I would have had photos to put up on the blog to show just how much fun was had – but Lydia lost her camera on the last night – typical, she just wasn’t considering the blog potential was she! Nevermind, Celia to the rescue.....

Tuesday, 26 February 2008
One MOT down since evil boob went bad.
Sunday, 17 February 2008
Rudding Park.


I was so full afterwards! Yum, thanks guys.
Friday, 15 February 2008
Thursday, 14 February 2008
a weighty issue
Yes, the pills-from-hell (steroids) had made me water retentive and my face bloated like a big bouncy ball and yes, that went not long after finishing taking them.
However, I can't really blame the 2 stone that seemed to accumulate on my body during chemo on the steroids entirely. That was down to me being totally sedentary and eating like a crazy woman (well, some of that was due to pills-from-hell actually making me crave food to take away a funny taste in my mouth, but still there is no denying that scientific equation about calories in = energy out).
So I did think that once I stopped taking the pills-from-hell, stopped eating like a woman crazed, started being active in my daily life (let alone actually do some proper exercise), that I would see the weight just drop off me.
No! Despite having concsiously tried to eat healthily and sensibly since christmas and taking on a new love of (low-level) exercise - it ain't doing all that much. Yes, I am feeling so much healthier and more energentic and I am slowly tip-toeing down the pounds. But my BMI is still in the overweight category - Grrrrrrrrrr - although if I am generous with my height measurements I can just teter on the boundry with normal ;-D
Don't get me wrong, I am not unhappy with my weight and don't think I am actually all that fat (whatever my BMI score says!) and I certainly don't feel self-conscious anymore like I did with the bloated bouncy ball face. I would just like to be my old dress size and I guess it will just have to be a gradual continued effort to get there (no big suprise that then). I have read that many women think that Tamoxifen can make you put on weight and so that might be why I am not loosing much. But, I don't really beleive that - I think that is an excuse to explain away being lazy and fat!
Anyway, perhaps I should resurect the graphs and publish my weight for all to see - that would be an incentive to shift those pounds! I thought for the purposes of this blog entry I should also include some photos to illustrate me at the start and end of 6 months of chemotherapy - I think it is self explanatory which waist-line is which (I haven't selected a deliberately-horrible frumpy post-chemo one to prove my point or anything! honest ;-D ).


Update: Romance isn't dead!
I am also eating out on Sat and Sun nights too... so I guess I can't really go complaining at the size of my waistline now can I!
Tuesday, 5 February 2008
Discharged!
"Go away - we don't want to see you again!"
Yippeeeeeeee. I am going to be followed up by my breast team and the lovely Mr Turton breast surgeon. I will next see him at the end of Feb and then I expect it will be 6-monthly/yearly from then on, with the obligatory yearly mammograms of course. But this years mammo was clear; no sign of recurrance. Jolly good.
I am picking up energy-wise as well. I have been using my recuperation days to go for small swims and I think it is making all the difference - it has been noticed that I am not so comatose in the evenings and am walking with a bit more of a spring in my step - including tackling the stairs at work! I still am pooped by my days in work, but they are working really well being alternate days. I am relucatant to increase this just yet because I would then have to sacrifice the exercise and I think that is helping me get better and it is really important to me. So slowly but surely I will get there. I still have my low days (like yesterday my limbs were tired and I hardly had energy to pick my feet up by the end of the day) but they are getting fewer and I am sure there will come a point where I just don't think about it.
Tuesday, 15 January 2008
Slowing down again.
But, i actually now feel a little refreshed again and so hopefully can throw myself back into it tomorrow after an early night tonight (although these days every night seems to be an early night for me, ho humm)
Saturday, 12 January 2008
Clinical Trials and me.
Wednesday, 9 January 2008
Mammogrms and lumbar punctures
Mammogram done on Friday. Boy, they are painful things... especially where "evil boob" post surgery is concerned . Imagine a boob, put between 2 plates in a vice and squished flat until you think it can't possibly squish anymore... and then tighten some more. Then add in lots of "just move that arm there", "just relax that shoulder back", "just suck your belly in out the way of the machine" ;-D
Results in the post within 4 weeks. I am not too worried about this.
Lumbar puncture done yesterday. I didn't like it all that much. It was mainly uncomfortable and you don't feel much apart from a bit of pushing and crunching between my vertebrae. I got myself all crunched up into a ball and I had a very nice doctor come and do it. The pressure was normal, which is great - but means I went through it for what is probably going to turn out to be nowt. But as long as nothings wrong there then that's all that matters. The neurologists have now lost interest in my and it's just the opthalmologists tests to come now. Afterwards, I had to lie down for a couple of hours before going home. I then lay around some more at home and had James wait on me like old chemo days. He is good to me. I seem to have escaped headaches that can happen as a result and apart from some discomfort in my back (only to be expected after having a needle pushed into my spine!) I am feeling fine.
Sunday, 30 December 2007
Back to the medical stuff.
It's also my first annual mammogram scheduled for the 4th Jan.
Wednesday, 19 December 2007
San Francisco.


Tuesday, 27 November 2007
I'm oh so tired!
I just feel so exhausted all the time these days. Today it's 12 o'clock and I've just woken up and I will probably spend much of today in my PJ's. I am working Monday, Thursday and Friday which gives me Tuesday and Wednesday to recuperate mid week. I need it; a simple overnight sleep doesn't seem to recharge my batteries these days.
I seem to be finding it harder mentally to deal with than going through much of chemo (I am sure it probably isn't but that's how I am feeling right now). My body just isn't living up to my expectations and won't do even the simplest things... like staying awake on my second day in work on the trot on Fridays - I end up a walking zombie on these days with my eyes so sore, tired and squinty. Monday and Thursday's at least I can function - all be it sleepily, but Fridays I literally have closed my eyes and almost fallen asleep while walking into work. Now that's just weird!
I watched the Kylie documentary this weekend. Miss Minogue started her tour about 5 months from where I am now (so I have a few months reprieve yet before needing to start my own world tour!). It was reassuring to see even Miss Minogue got tired; she fell asleep on a rug straight after her first tour and the way she described how tired her body was at that point just rang so true. She described that time as a battleground with her own body - oh how I feel like that... mentally I am up for getting back on track but physically I am not quite managing it. It's just getting me so down.
I just have a couple of weeks left of battling on and then I go to San Fransisco and then it's Christmas and then I will be better! I WILL be.
Wednesday, 21 November 2007
Page 11 girl!
What am I babbling on about.... this;
That's Me!!!!!
My local Macmillan centre contacted me earlier in the week to see if they could put my name forward to the Macmillan press office to kick start a new campaign they are launching this week. The campaign is to highlight issues affecting working and cancer and because I had always said my work were very supportive they thought of me! They said it helps to have a "face" to put to the story and it would help exposure for the charities campaign if I could give an interview. I didn't realise when I said yes it was to go on the telly! Yikes! they wanted to interview me for the 6 o'clock news! However, these things move quickly and next minute they chose another feature. Boo, I quite wanted to go on the telly after all. However, the Yorkshire Post contacted me instead and asked to talk to me. So I did, and here is the result; Page 11 of the Yorkshire Post.
You can read all about me at; http://www.yorkshirepost.co.uk/features/The-cancer-patients-who-face.3507056.jp
I am just off down the newsagents to buy a few copies.
Sunday, 18 November 2007
Sleep.
But, through working normality seems to be returning.
You would therefore think that I would want to put breast cancer far behind me and move on. Oh no, not me!!!! This weekend I have been to a younger women's forum run by breast cancer care. It was a 2 day event with talks on medical updates, diet and exercise after treatment, fertility and adoption, coping with uncertainty, and of course the mini makeover and mini manicures. I was put up in a hotel for a night in Leeds and there was an evening meal to get to know other women. I was able to meet others who had finished treatment about the same time as me and was reassured that how I am feeling at the moment is normal; most are not planning on going back to work till the new year so I am doing pretty well. I was still almost the youngest there even though it was supposed to be a younger women's forum - the majority being in their 40's. It was a really fab weekend all in all, especially after I had umm-ed and ahh-ed about going as it was time to move on, but I am really glad I went.
I also have signed up as a Macmillian patient volunteer to get involved in various things for them. My first assignment has just been sent to me in the post. I am to read and review the book "Breast Cancer for Dummies" so they can know whether it is useful, reliable, interesting and whether I would recommend it to others etc.
I have only started on a few pages so far. It seems like it will be quite good and its refreshing seeing it in the "for dummies" format. However, I am already getting annoyed by the "American-ness" of the book; talking about cheerleading squads and yes ma'am's and general American biased things. Grrr, it's really annoying but well a reviewers work is never done and I must just read-past that!
Wednesday, 7 November 2007
One Year On.
one year ago today I went to get my biopsy results and got the shock of a lifetime.
But, rather than get all melancholy about what a big year it has been... I feel like celebrating all the great things that have come of this...
Firstly, I now have a bank of wigs for any future fancy dress parties I get invited to... my costumes will be based around which wig I can bring out of retirement
The other things are all going to sound really corny.. but;
I feel I have learnt a lot about myself and have surprised myself that I am actually quite strong to get through this and I have just got on with it really (not that you can do much else).
James and I have been made stronger - not that we were not close or strong before but in some ways we have got through this together, never once wishing the other would have acted in some other way or said something else, not once with a bad word to one another. We know we can face anything in the future now.
I've made new friends. This may sound silly but I have got to know others who have had breast cancer, especially younger girls and although the circumstances I have got to know them are not what you would wish for it's nice to know they are out there. I've recently enjoyed a lovely evening out over dinner and a couple of glasses of wine with my new breast-friend Sarah which i really enjoyed. Long may that friendship last!
Breast cancer is now a part of me. It has shaped who I am now and who I will be in the future. I am certainly not going to shut this year off and never talk about it again, I am quite proud of getting through this. In some ways I am a different person with slightly different worries now. But I still let the little things worry me and I still can enjoy a good gossip about the trivial things in life!
Wednesday, 31 October 2007
Cold, phah!
It is pretty much on the way out. However, I am still pretty feeble and have had to stay at home today after going into work yesterday has left me a little tired and headachey. The return to work has not been going as well as I had hoped. What with one thing and another..... the clinic appointments, scans, worrying myself silly, catching a cold.... I have hardly done more than 1-2 days a week so far. I had wanted to be doing 3 regular days by now, but I seem to be just grabbing them when I can.
Next week the 3 day week begins properly.....
Monday, 29 October 2007
Thursday, 25 October 2007
A common cold!
I haven't had a cold for ages and that's pretty good going with my immune system over the last year. It's actually quite refreshing to be sufferring from something bog standard and so I have been snuggling myself up in bed enjoying feeling royally sorry for myself and trying to self medicate myself with everything under the sun to get rid of it quickly. Any old wives tales I should be trying??? Think I have licked the worst of it though and am getting better already.
Wednesday, 24 October 2007
Bouncing back
It's quite freaky at this particular moment because I am lying in bed with a bit of a sore throat watching This Morning and listening to an item about a lady who went to the opticians for a routine eye test who was diagnosed with a brain tumour because they saw swelling of the optic nerve at the back of the eye. Erm... well that's just a bit freaky.... luckily mine isn't a brain tumour but it shows it wasn't all that far fetched!
I am finding it hard to jump back after last week. Perhaps it's just because I am slightly under the weather. But it all shocked me deeper than I thought possible, deeper than going and getting my original lump results. I think in some ways with breast tumours you can just cut-it-out or lop-it-off but when you start talking about brain tumours that sounds scary - is it operable? do you have to have brain radiation? Is this it?
I think the main thing that hit me was that up to now I have had hope; we cut out the lump and it's gone and I am to be one of the lucky ones who goes on for 10 years and is never worried by it again. However, suddenly I was faced with the idea that I might not be so lucky, that it might have spread and was no longer "curable" (if it ever is!) and we would have to start talking time-scales.
Thankfully it was all nothing and I've popped back into the "hope" category just-like-that. So no more thinking like that for me, just looking forward now.
This is the way it is going to be from now on. Any sysmptom I present with that could be "cancer spread" will have to be investigated. Whereas in any old normal person cancer would be the last port of call in eliminating possible causes, with my past history I am now always going to be fast tracked into cancer world. I expect they won't all be as scary as this particular scare. After all I have been sent for bone scans to check for spread before and that didn't feel anywhere quite as serious. But this is me now. Hyperchondriac central!
Sunday, 14 October 2007
It's OK, I can have my life back now.
Sunday 14th October;
Wednesday 17th October;
Limbo......
That's how I feel right now. I have spent the last few days feeling sick in my stomach. It's just nerves and that gives me butterflies... which reminds me I have something big to worry about and that gets me more nervous and sick. It's a viscous circle. I have tried to go into work and throw my mind onto that and that has worked OK. I haven't told anyone, and for that I am sorry, but telling people makes it real and I don't want it to be real.I went to see a counsellor on Monday too. It was totally coincidence that I had this appointment. My breast care nurse had made this appointment for me some time ago to coincide with my return to work. She said that the time when people feel most down and struggle can be the getting back to normal time, when you are expected to bounce back but it doesn't quite work like that. So she referred me to clinical psychology. I went for an assessment 2 weeks ago and basically went through my case and told her how on top of the world I was feeling, enthusiastic to get back to work and normality and how I didn't really feel like I would need these sessions. However, we made a second appointment for this week to complete the assessment where I could decide if I wanted to continue. This weeks appointment couldn't be further from how I went in last time. I needed it, I just needed to voice to someone how scared I was. My biggest fear is that I don't know how I am going to bounce back from this. My whole return to work had been arranged on an optimistic timescale with occupational health because I felt so up for it. It hinged on me being able to happily throw myself into it. Now I am scared I have lost that enthusiasm and excitement and the want to get on with everything. I feel so tired now. I don't know if , all things being OK, I will be able to pick myself back up to the sheer happiness I felt around the time of my party and holiday. But I guess I will do. I hope I get the chance to find out if I can put a little blip of a scare behind me. I hope it is just a scare, although in my heart right now on the night before the results I am not so sure. I will know tomorrow. Tomorrow will be a very long day.
Thursday 18th October;Its clear! The brain scan looks normal and does not show any tumour masses in my brain.
That's all I need to hear. Relief floods over me. OK so we need to work out what is causing the pressure on my optic nerve and so I will be referred to an eye doctor. But compared to a brain tumour other causes are just so not my problem right now. I can stop the steroids. Yippeeee I hate steroids 7 days of 8mg/day of steroids had left me puffy and flushed, made me have a funny taste in my mouth and eat like there is no tomorrow. I will stop them right now.
I can also have my life back again. James and I had switched right back into the limbo world of not knowing whether we could book anything or do anything because I may have to start treatment again. We wanted to book flights to go to San Fransisco but just couldn't be sure we could go. So now I can start thinking of life again and make some plans. I am going to try and put this all behind me. Although right now I am feeling a little overwhelmed and spaced out. I will just let the news sink in for a little while this evening and perhaps book those flights afterall.
Spoilt Rotten
We arrive Friday afternoon to get ourselves straight into snuggly robes and off for a pedicure to prepare our toenails for a weekend on show. Then it was off for fabulous 3 course meal followed by coffee relaxing in a secluded corner. The next morning it was up for a lovely breakfast in our room and off out for a dip in the pool and chill out before I pootled off to get an pampering hand treatment followed by manicure to match my "Rampant Rose" toes.
More fabulous food followed for lunch and the afternoon was passed having a leg and thigh massage. But I didnt stop there.... Sat night was Champagne with dinner night and sunday was a 50 minute Clarins facial and also a quick eyebrow tidy up. As a result of the facial I happened to come home with a little goody bag of lovely creams, lotions and potions. Oh it felt so divine to be in such luxury - it really was a cut above. I cannot begin to tell you how much I needed it right now... mmmmmmm

